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07/10/2008 - Gabriel Continues on Course 4 of Maintenance. Gabriel continues to do well as he progresses through course 4 of his maintenance treatments. Everyday I keep waiting for him to rebel against taking his medication everyday or going to the hospital, but he doesn't. He is so cooperative and does exactly what we ask him to do with such a spirit of trust and dependency. We can all learn so much from him. He is truly an amazing little warrior.
If you haven't done so yet, visit Gabriel's Gifts Galore at www.GabrielsGiftsGalore.com. It is an online store we have set-up to raise funds to help us with Gabriel's ongoing treatments.
04/24/2008 - Gabriel Begins Course 3 of Maintenance.
Well, a lot has happened since my last
update on Gabriel. He had a fabulous time at the Monster
Jam event in Orlando, made possible by Chris Rossbach
from Live Nation Motor Sports in Tampa, (Chris and
Gabriel at right), his hair is growing back now, he has
learned to ride a 2 wheel bicycle, and now he wants to
tackle a pair of roller blades. He is truly an amazing
little warrior. If you haven't done so yet, visit Gabriel's Gifts
Galore at www.GabrielsGiftsGalore.com. It is an online
store we have set-up to raise funds to help us with
Gabriel's ongoing treatments. You can also follow
Gabriel's progress at www.GabrielPSullivan.com.
01/28/2008 - Gabriel Begins Course 2 of Maintenance. --
Gabriel began Phase 5 Maintenance Course 2 this week and is doing
very well. His spirits are always high and it seems that the worst
part of the treatments are behind us. His Maintenance Phase will
continue now for the remaining 2 1/2 years with a daily regiment
of medications, but he handles taking his medications like a true
warrior. Never a complaint or fuss and always looking ahead to
when he is better. Many times he will say, "When I get better, I
am going to play on a soccer team". He is such a strong little boy
and tells us often that Jesus is going to make him better. I
will continue to put up some new videos and photos since I know
many of you are following Gabriel's progress regularly. We thank you for all your
prayers, we know that it is the power of prayer that will see us
all through this.
It was a phase I though would pass, but there is
no sign of that in the near future. Recently when you ask him
what's coming soon, you think he will say "Santa" or "Christmas",
but he says "Monster Jam!" Then if you correct him and say, no
Gabriel, Christmas is coming soon, he will tell you, "yea, but
then it is Monster Jam." He is so cute. We are all so excited for Gabriel and I will post the pictures and videos of Gabriel at the Monster Jam in the Citrus Bowl in Orlando Florida once we return home January 27, 2008. We thank you for all your
prayers, we know that it is the power of prayer that will see us
all through this. (For
a complete list of updates, see the Index of Updates on the front
page of Gabriel's Website.) |
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Not
too much has happened since my last update. Gabriel had a
beautiful Confirmation and he did break his arm riding his bike in our yard. He fell and broke
his arm in two places just above his left wrist. We took him to
All Children's Hospital where they have a pediatric orthopedic
center near by. He was so good as the doctor took X-rays, and then let him
pick out a color for his cast. The doctor asked him if it hurt and
Gabriel shook his head no. Then the doctor said "it will when I
start to wrap the cast on". The PA showed him a series of colored
samples and asked him to pick one. Of course he picked blue since
blue is his favorite color. I think that's because blue is the
color of one of his favorite monster trucks, "Blue Thunder".
Gabriel
had the cast on for four weeks and everything healed nicely. The
doctor was actually surprised to find out Gabriel had leukemia
because he looked so good and his bones healed so well. Once the
cast was removed they did a bone density scan because his Oncology
doctor told us the medication, Dexamethazone he is taking causes
his bones to loose density and makes them more fragile. So he
won't be riding his bike for awhile. 
On
May 28th, Gabriel received the Sacrament of Confirmation. He
looked so cute. I will post some video clips shortly. On our way
to the Church, Gabriel wanted a toasted bagel from Dunkin Donuts
with cream cheese. We told him that we would get him a bagel to
celebrate his Confirmation after Mass was over. Well, just as the
Bishop gave the final blessing, Gabriel looked at his sister and
sponsor Maria and asked, "can I have a bagel now?". Gabriel took a
few pictures and off we went to Dunkin Donuts to get him a toasted
bagel with cream cheese. We all went back to our house and all
celebrated this amazing gift Gabriel received in the awesome
Sacrament. Punctuated of course with his bagel.
I
want to thank Bishop Lynch of the Diocese of St. Petersburg for
his tremendous compassion in administering this Sacrament of
Confirmation to Gabriel at his young age. With this added
spiritual strength, I believe that Gabriel's chances of survival
and beating this cancer has just been increased a thousand fold. 
That is about it for now, I will
keep you all posted as
we continue to journey forward with Gabriel. We have
completed the first year of treatments and have 2 1/2 more to go.
The
Monster Jam event this past January has been the
highlight of Gabriel's life. You would think it was just
yesterday by the way he is so enthralled with his
Monster Jam trucks, video games, World Finals DVD's
etc... It has become something that allows him to take
his mind off all that is going on around him with daily
medications, stricked hygiene precautions and visits to
the hospital for his chemo treatments. I placed a video
up on his website of Gabriel going to the hospital
dressed in his Monster Truck shirt, El Toro Loco hat and
playing with his Monster Jam Trucks in the treatment
room. Near the end of the video you will see him laying
on the table clutching his Monster Trucks even during
his treatments. It is a very cute 6 minute clip. There
are some other new clips there as well. 
We
are coming up on the one year mark of Gabriel's
diagnoses with Leukemia (May 1st). It has been a very
long and trying year for all of us and we thank God for
our Faith and all your prayers and support. On May 28th,
2008, Gabriel will be receiving the Sacrament of
Confirmation. Our local Bishop has extended this
privilege to him to strengthen him and to aid him in
this fight that he is in for his life. The Sacrament of
Confirmation is called "The Sacrament of Battle" by the
Church and for good reason. It gives us the spiritual
strengthening we need to combat the evils of this world
in all its forms. Please pray for Gabriel especially on
the evening of May 28th and unite your prayers with him
as this most holy Sacrament is bestowed upon him.
with
this brothers, plays soccer, swims and even jumps over
ramps with his bicycle. And if you think that is
something, you should see him on a skateboard. I promise
I will get some more videos up of all this in the coming
weeks and months ahead. 
Well,
that is about it for now, I will post another update as
we continue to journey forward with Gabriel.
11/20/2007 -
Gabriel Invited as Special Guest at Monster Truck JAM. -- Live
Nation, the organization involved with the Monster JAM
organization coming to Florida has invited Gabriel and his family
to be their special guest at the Monster Truck Jam Rally in
Orlando Florida January 26th. Gabriel has been a long time fan of
the Monster Jam and the collection of Hot Wheels Monster Trucks.
From the very first day Gabriel was diagnosed with Leukemia, the
only thing that would calm him down and get his attention off the
doctors poking him and nurses doing their hourly tests on him, was
his monster trucks, his monster truck video and his monster truck
Play Station video game. 
Gabriel
turned 4 on August 6th and just wanted the Official Hot Wheels
Monster Jam trucks for is birthday. He asked specifically for TAZ
(Tasmanian Devil) and Blue Thunder, but I guess they are not out
yet, but he keeps looking. Every week on our way home from All
Childrens Hospital, he insists we stop at Walmart and see if they
are in yet. He settles for some popcorn chicken only after a
thorough walk through the Hot Wheels isle. I would have thought
his love for the monster trucks would have passed as a phase but
he really loves watching the videos and playing Monster Trucks.
Every morning when Gabriel gets up, he brings me Outlaw and he
gets Batman and my legs, arms, belly and feet all become jumps and
obstacles. The arm of my chair has become Thunder Alley. He has
created some amazing memories for me as his father. Ones I will
cherish the rest of my life.